Recommended Blogs and Videos for Alzheimer's/Dementia Caregivers
Below are some of my favorite blogs and videos for people who are living with Alzheimer's disease or another dementia, and their care partners. (My own blog is Inside Dementia.) If you'd like to recommend a blog or video, please contact me.
Caregivers.com (I write for them weekly, often about dementia caregiving)
ChangingAging (about changing the culture of elder care, not just dementia, but excellent)
Commonsense Caregiving (by author of "Staying Afloat in a Sea of Forgetfulness")
Deborah Shouse Writes (Author of "Finding Love in the Land of Dementia")
Dementia Mentors (started in May 2014 by people with dementia for people with dementia)
Minding Our Elders (by Carol Bradley Bursack, author of book of same name)
Missing Jim: Confessions of an ALZ Wife (Early-onset Alzheimer's)
My Mom, My Hero (author of book of the same name)
Richard Taylor's blog (author of "Alzheimer's From the Inside Out")
The Generation Above Me (About much more than dementia and elder care, but highly recommended)
"Famous Faces of Alzheimer's 2014," created by Toni Wombaker, care partner for her mother
"Person-Centered Matters," 2014, a beautiful and compelling 16-minute video produced by the Dementia Action Alliance and filmed by a former National Geographic filmmaker. It portrays five people living with dementia and how person-centered care helps them live more fully.
"Alzheimer's: An Urgent Epidemic," by David Shenk, 2014.
The trailer for "Alive Inside," the 2014 Sundance Film Festival Audience Award winner, a documentary about the power of individualized playlists on iPods (music from a person's childhood and teen years) to reach people with advanced dementia who seem to have lost their ability to speak. See also:
Interview with Filmmaker Michael Rossato-Bennett on his documentary "Alive Inside" (see above). Very moving!
"Alzheimer's Disease Facts and Figures 2014" (from the Alzheimer's Association)
"The 7 Stages of Alzheimer's Disease Through a Caregiver's Eyes" and "Our Reality of Alzheimer's 2012" (Toni Wombaker's 2 videos about her mother's progression through the stages of Alzheimer's disease, and the lessons Toni learned as a caregiver--very moving and informative)
Interview with Lisa Genova, author of novel "Still Alice," about how her book shows that you can still connect with a person with advanced dementia, that we are more than memory. "Still Alice" is being made into a move.